In addition to still being alive on the planet six years after my cancer diagnosis, one of my other day-to-day blessings is getting to connect with other appendix cancer survivors.
One of the big drivers in deciding to start this blog was the opportunity to connect with other appendix cancer patients, particularly since there was so little information out there and I hadn’t met anyone with the same type of cancer.
Over the years, I’ve made many new friends and we have been blessed to share stories, experiences, treatment survival strategies, laughs, and tears.
Many thanks to Cancerwise, MD Anderson’s blog, for featuring my story in their blog this week where I discuss taking an active role in your treatment.
When I was a kid, my mom and I would go on long walks with friends every Saturday in the Sierra Nevadas near Yosemite and often go camping. Or we would take road trips together to visit old friends in a different part of California, about 8 hours away from where we lived. We enjoyed these periods of time where we could hang out and just relax.
Fast forward to today, and it’s always a treat when my mom, who lives 1800 miles away, comes into town for a visit. These mommy-daughter visits typically include nice lunches, walks around the hike-and-bike trail with the dogs, and time spent with my kids, husband, and friends.
But 2-3 times a year over the past four years, we’ve lined up our mommy-daughter “vacations” at MD Anderson for our respective cancer checkups, scheduling our CT scans back-to-back and spending a few days in Houston. We’re both blessed to be on relatively uneventful survivorship paths. Yes, we get together for fun trips as well, but the steady drumbeat of cancer checkups seems to dominate our visits. Continue reading →
On Sunday, January 4th, 2015, we lost Stuart Scott of ESPN fame to a rare type of cancer – appendiceal or appendix cancer. He was only 49. Stuart never gave up fighting after his initial cancer diagnosis in 2007 and two recurrences. He didn’t often mention his type of cancer but he briefly referenced it in an interview with Men’s Health magazine. Before Stuart Scott, I was aware of only one other celebrity, Audrey Hepburn, who battled with appendix cancer. Continue reading →
Today, November 30, 2014, is my FOURTH anniversary with NED (no evidence of disease) after my journey with appendiceal adenocarcinoma. I still find it miraculous to be on the planet.
Each year, the days leading up to Thanksgiving are especially reflective for me. Thanksgiving is when I definitely stop to take inventory of what I have and what I don’t have. No cancer! Continue reading →
It has been confirmed that NED (no evidence of disease) is still my friend after my latest visit to MD Anderson. What a pal!
My mom’s follicular lymphoma is also stable so she does not need any treatment yet. Fantastic!
This is incredible news for both of us.
I’m wondering why I took so long to post about it (our visits were back in April). Life keeps throwing curve balls and I think blogging was low on the list of things to do.
I’ve also been a bit sensitive to shouting out good news (as crazy as that might seem) because a few friends have just been diagnosed with appendix cancer or are struggling through treatment or have relapsed. It is difficult to make sense of it all.
Today (November 30) is my “new birthday.” Three years ago today, I had a massive surgery at MD Anderson toremove the remaining cancer tumor (appendiceal adenocarcinoma) in my abdomen that six months of weekly chemo had reduced to a pulp.
None of the doctors were certain how the surgery would turn out but it went well. I even escaped the need for the HIPEC and was declared to have “no evidence of disease (NED)!” Since then, my visits to MDA for checkup scans have moved from 3-month to 6-month intervals, giving me (and my family) peace of mind with each clean scan and NED result. Continue reading →